23andMe sale comes with privacy concerns


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Summary

Company acquisition

A bankruptcy court has approved the sale of 23andMe to TTAM Research Institute, with the deal expected to be completed by July 8.

Customer privacy

According to an email sent to customers, 23andMe emphasized that "customer privacy is at the core of TTAM’s mission."

Legal objections

Last month, 27 state attorneys general and the District of Columbia filed a joint lawsuit to block the sale over concerns about customers' genetic information.


Full story

A bankruptcy court has approved the sale of 23andMe to TTAM Research Institute. In an email sent out to customers on Tuesday, July 1, the genetic testing firm announced the deal is likely to go through by July 8.

23andMe sale

TTAM purchased the fledgling company for $305 million after 23andMe filed for bankruptcy back in March. California-based TTAM is led by former 23andMe CEO Anne Wojcicki.

“Core to my beliefs is that individuals should be empowered to have choice and transparency with respect to their genetic data and have the opportunity to continue to learn about their ancestry and health risks as they wish,” Wojcicki said in a statement. “The future of healthcare belongs to all of us.”

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This sale replaces a previous bid from Regeneron Pharmaceuticals, which wanted to purchase the company for $256 million.

TTAM’s acquisition also includes Lemonaid Health, a telemedicine company purchased by 23andMe back in 2021 for $400 million.

Customer privacy

In their email to customers, 23andMe emphasized that “customer privacy is at the core of TTAM’s mission.” They also assured customers that any personal data and account information will continue to be safeguarded under 23andMe’s privacy commitments.

Founded in 2006, 23andMe now has around 15 million customers. Those customers do have the ability to opt out of any research or permanently delete their data. That means if you are a customer and delete your data prior to the finalization of the sale, TTAM should not have access to it.

According to their email, 23andMe is required to give customers two days’ notice before the sale is complete, with details on privacy commitments and how to delete their data.

Sale objections

Last month, 27 state attorneys general and the District of Columbia filed a joint lawsuit to block the sale, aiming to protect customers’ personal genetic information.

However, a lawyer who represented Oregon in that lawsuit said this outcome would satisfy the state’s concerns. Not every state is on board, though. The bankruptcy judge who approved the sale acknowledged that Kentucky, Tennessee, Utah, Texas and California still opposed the sale.

California Attorney General Rob Bonta’s office spoke with Politico on Monday, June 30, and said this sale does not comply with California’s Genetic Information Privacy Act, or GIPA, which requires companies to obtain opt-in consent from customers before selling their genetic information to third parties.

“We believe that 23andMe’s proposed bankruptcy sale of vast amounts of genetic data and biological samples to TTAM — or potentially other purchasers — does not comply with GIPA and are disappointed in the court green lighting the sale despite our objection,” Bonta spokesperson Elissa Perez told Politico.

Perez went on to say the state is considering next steps. Meanwhile, the company plans to complete the sale.

“We remain focused on completing the steps necessary to finalize the transaction in the weeks ahead so the Company can move into its next chapter as a nonprofit,” said Mark Jensen, chair of the board and member of the Special Committee of the Board of Directors of 23andMe.

Alex Delia (Deputy Managing Editor) and Drew Pittock (Digital Producer) contributed to this report.
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Why this story matters

The sale of 23andMe to TTAM Research Institute raises important questions about customer genetic data privacy, legal compliance and the future direction of a large consumer genetics company.

Customer privacy

Protecting the genetic data of 23andMe's 15 million customers is a central concern, as both the company and state officials have highlighted potential risks and required safeguards amid the sale.

Legal and regulatory compliance

The opposition from multiple state attorneys general and concerns regarding compliance with laws such as California's Genetic Information Privacy Act illustrate ongoing legal disputes over how genetic data can be transferred or sold.

Corporate restructuring

The transition of 23andMe from bankruptcy to acquisition by a new owner, including a plan to become a nonprofit, has implications for the company's business model and its approach to consumer health care.

Get the big picture

Synthesized coverage insights across 49 media outlets

Behind the numbers

The sale of 23andMe’s assets to TTAM Research Institute was approved for $305 million, outbidding a previous $256 million offer from Regeneron Pharmaceuticals. The company has collected genetic data from an estimated 13 to 15 million customers. About 80% of these customers consented to their data being used for research, and 1.9 million deleted their accounts amid privacy concerns.

Context corner

The controversy over the sale of 23andMe centers on evolving debates about genetic privacy and data ownership. The historical context includes past data breaches at 23andMe and a broader lack of robust laws governing personal genetic information in the U.S., leading to heightened concerns whenever the company’s ownership or business model changes.

Debunking

Claims that 23andMe’s genetic data was to be transferred directly to a pharmaceutical firm are incorrect. The sale to TTAM Research Institute — a nonprofit led by a co-founder — specifically avoided selling customer data to a third party. Multiple sources confirm that the nonprofit has pledged to honor existing privacy policies and strengthen safeguards, although skepticism remains.

Bias comparison

  • Media outlets on the left frame the sale of 23andMe to the nonprofit TTAM Research Institute with a wary tone, emphasizing the “scary proposition” of transferring genetic data and highlighting privacy risks, including past breaches and the vulnerability of specific groups like the Jewish community.
  • Media outlets in the center navigate a middle path, focusing on procedural details, such as the bankruptcy process and customer notifications, portraying the sale as a cautiously optimistic step forward.
  • Media outlets on the right adopt a straightforward, factual tone, presenting Anne Wojcicki’s leadership and TTAM’s privacy commitments as reassuring without delving into legal disputes or broader risks.

Media landscape

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49 total sources

Key points from the Left

  • A bankruptcy judge approved the sale of 23andMe to TTAM Research Institute for $305 million, avoiding a transfer of genetic data to a third party.
  • TTAM Research Institute aims to use the DNA data for medical research and maintains privacy protections.
  • Some states, including California and Kentucky, oppose the sale, emphasizing concerns about consumer DNA data security.
  • Experts like Laura Coordes hope this case will inspire better data privacy laws and protections in bankruptcy.

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Key points from the Center

  • On June 30, the U.S. Bankruptcy Court approved the sale of "substantially all" assets of 23andMe to TTAM Research Institute, a nonprofit led by co-founder Anne Wojcicki.
  • This sale follows 23andMe's Chapter 11 bankruptcy filing in late March, and a contested bidding process including Regeneron Pharmaceuticals, amid concerns about genetic data privacy.
  • TTAM will acquire 23andMe's Personal Genome Service, Research Services and Lemonaid Health for $305 million, committing to privacy policies, customer choice and enhanced data protections.
  • Judge Brian Walsh described the data sale as "a scary proposition" but noted many state objections were resolved; 27 states and D.C. sued to block the sale without consent.
  • The approval secures 23andMe’s mission to help people understand the genome globally, though some customers remain uneasy, reflecting ongoing debate about genetic data as property and privacy safeguards.

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Key points from the Right

  • Anne Wojcicki’s nonprofit TTAM Research Institute received court approval to acquire 23andMe for $305 million.
  • TTAM will buy "substantially all" of 23andMe’s assets, as confirmed by U.S. Bankruptcy Judge Brian C. Walsh.
  • Wojcicki expressed her excitement to help people access, understand and benefit from the human genome.
  • 23andMe stated that TTAM is committed to following company privacy policies and applicable laws.

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